Human Genome Project, HUGO and Future Health Care

Gert‐Jan B van Ommen, Leiden University Medical Center, Leiden, The Netherlands

Published online: July 2006

DOI: 10.1038/npg.els.0005177

The Human Genome Project and the publication of the human genome sequence have opened the possibility of an entirely new approach to healthcare, based on the genotype of the individual. However, this approach is fraught with ethical problems, among them the risk of widening the gap between haves and have-nots both globally and within any one country.

Keywords: human genome project; healthcare; pharmacogenomics; bioinformatics; nanotechnology; automation

 References
    book HUGO–ELSI Committee (1996) Statement on the Principled Conduct of Genetics Research. http://www.gene.ucl.ac.uk/hugo/conduct.htm
    book HUGO Ethics Committee (1998) Statement on DNA Sampling: Control and Access. http://www.gene.ucl.ac.uk/hugo/sampling.html
    book HUGO Ethics Committee (1999) Statement on Cloning. http://www.biol.tsukuba.ac.jp/~macer/hugoclone.html
    book HUGO Ethics Committee (2000) Statement on Benefit-sharing. http://www.gene.ucl.ac.uk/hugo/benefit.html
    book HUGO Ethics Committee (2001) Statement on Gene Therapy Research. http://www.biol.tsukuba.ac.jp/~macer/genther.htm
 Web Links
    ePath http://www.celera.com Celera http://www.gene.ucl.ac.uk
    ePath Centre for Human Genetics, Galton Laboratory, University College London http://www.ebi.ac.uk
    ePath European Bioinformatics Institute http://www.hugo-international.org
    ePath European Directive on patenting biological materials http://www.ncbi.nlm.nih.gov/dbEST
    ePath GenBank. Expressed Sequence Tags database http://www.geneclinics.com
    ePath GeneClinics http://www.gdb.org
    ePath Genome Database, Hospital for Sick Children, Toronto, Canada http://www.hugo-international.org/hugo
    ePath HUGO http://www.ornl.gov/hgmis
    ePath Human Genome Project Information http://www.infobiogen.fr
    ePath Infobiogen http://orphanet.infobiogen.fr
    ePath Infobiogen. Information on rare genetic diseases http://www.lgtc.nl
    ePath Leiden University Medical Center. Leiden Genome Technology Center http://www.dmd.nl
    ePath Leiden University Medical Center. Muscular dystrophy pages. http://www.ncbi.nlm.nih.gov/omim
    other OMIM (Online Mendelian Inheritance in Man)

Related Sub-Topics:

Bioethics | Techniques and Tools in Clinical Genetics | Health Care
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Article Title: Human Genome Project, HUGO and Future Health Care
 
How to Cite close
van Ommen, Gert‐Jan B(Jul 2006) Human Genome Project, HUGO and Future Health Care. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1038/npg.els.0005177]