Privacy: Confidentiality and Responsibility


There may be conflict between the right of an individual to retain their genetic privacy and the right of family members who have serious claims to that information for reasons of their own health. Complex issues can be behind these difficulties for patients and practitioners in the struggle to resolve such dilemmas.

Keywords: genetic privacy; confidentiality; family dynamics; grief; ethics


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Further Reading

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Weatherall DJ (1991) The New Genetics and Clinical Practice. Oxford, UK: Oxford University Press.

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Robson, Fiona M(Jul 2006) Privacy: Confidentiality and Responsibility. In: eLS. John Wiley & Sons Ltd, Chichester. [doi: 10.1038/npg.els.0005192]