Privacy: Confidentiality and Responsibility

Abstract

There may be conflict between the right of an individual to retain their genetic privacy and the right of family members who have serious claims to that information for reasons of their own health. Complex issues can be behind these difficulties for patients and practitioners in the struggle to resolve such dilemmas.

Keywords: genetic privacy; confidentiality; family dynamics; grief; ethics

References

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Further Reading

Abramsky L and Chapple J (eds.) (1994) Prenatal Diagnosis: The Human Side. London, UK: Chapman & Hall.

Darr A (1998) Genetics? What's it Got to Do with Me? London: Genetic Interest Group. [A resource pack for brothers, sisters and parents of people with a genetic disorder.]

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How to Cite close
Robson, Fiona M(Jul 2006) Privacy: Confidentiality and Responsibility. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1038/npg.els.0005192]