Insurance and Human Genetics: Approaches to Regulation

Trudo Lemmens, University of Toronto, Toronto, Ontario, Canada

Published online: July 2008

DOI: 10.1002/9780470015902.a0005204.pub2

The potential use of genetics for insurance purposes raises concerns about genetic discrimination. Regulatory strategies to curb genetic discrimination exist in several countries. These regulations aim at promoting a just distribution of insurance, which has multiple meanings in different social contexts, determining the potential impact of genetic discrimination.

Keywords: insurance; discrimination; human rights; justice; regulation

 References
    Ad Hoc Committee on Genetic Testing/Insurance Issues (1995) Background statement: genetic testing and insurance. American Journal of Human Genetics 56: 327–331.
    book Association of British Insurers (1997) Genetic Testing: ABI Code of Practice. London: Association of British Insurers.
    book DeNavas-Walt C, Proctor BD and Smith S (2007) "U.S. Census Bureau, Current Population Reports, P60-233", Income, Poverty, and Health Insurance Coverage in the United States: 2006. Washington, DC: US Government Printing Office. (available online: http://www.census.gov/prod/2007pubs/p60-233.pdf).
    book Dworkin R (2000) Sovereign Virtue: The Theory and Practice of Equality. Cambridge, MA: Harvard University Press.
    other Ledford H (2006) Genome Sequencing X Prize Announced: competition on to sequence 100 human genomes in 10 days: how tough can it be? Nature (5 October) doi:10.1038/news061002-9.
    Lemmens T (2000) Selective justice, genetic discrimination and insurance: should we single out genes in our laws? McGill Law Journal 45: 347–412.
    other Lemmens T (2003) Genetics and insurance discrimination: comparative legislative, regulatory and policy developments and Canadian options. Special edition: Precedent and Innovation. Health Law Journal (Special suppl.): 41–86.
    book Lemmens T, Lacroix M and Mykitiuk R (2007) Reading the Future? Legal and Ethical Challenges of Predictive Genetic Testing. Montréal: Thémis.
    Low L, King S and Wilkie T (1998) Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom. British Medical Journal 317: 1632–1635.
    Murray TH (1992) Genetics and the moral mission of health insurance. Hastings Center Report 22(6): 12–17.
    Pokorski RJ (1997) Insurance underwriting in the genetic era. American Journal of Human Genetics 60: 205–216.
    Robertson JA (2003) The 1000$ Genome: Ethical and Legal Issues in Whole Genome Sequencing of Individuals. American Journal of Bioethics 3(3): 1–10.
    Sandberg P (1995) Genetic information and life insurance: a proposal for an ethical European policy. Social Sciences and Medicine 40: 1549–1559.
    book Sorell T (ed.) (1998) Health Care, Ethics and Insurance. London: Routledge.
    ePath UNESCO (2005) Universal Declaration on Bioethics and Human Rights, http://portal.unesco.org/shs/en/ev.php-URL_ID=1883&URL_DO=DO_TOPIC&URL_SECTION=201.html
 Further Reading
    Daniels N (1990) Insurability and the HIV epidemic: ethical issues in underwriting. Milbank Quarterly 68: 497–525.
    book House of Commons, Science and Technology Committee (2001) Genetics and Insurance, 5th Report. London: HMSO.
    book McGleenan T, Wiesing U and Ewald F (eds) (1999) Genetics and Insurance. Oxford: Bios Scientific.
    book NIH-DOE Working Group on Ethical, Legal, and Social Implications of Human Genome Research (1993) Genetic Information and Health Insurance: Report of the Task Force on Genetic Information and Insurance. Washington, DC: National Institutes of Health.
    book Rothstein MA (ed.) (2004) Genetics and Life Insurance: Medical Underwriting and Social Policy. Cambridge: MIT Press.
    Wolf SM and Kahn JP (2007) Genetic testing and the future of disability insurance: ethics, law & policy. The Journal of Law, Medicine & Ethics 35(s2): 6–32.
 Web Links
    ePath National Center of Health Statistics http://www.cdc.gov/nchs/fastats/hinsure.htm.
    ePath United Kingdom Parliament. Science and Technology, 5th Report. http://www.parliament.the-stationery-office.co.uk/pa/cm200001/cmselect/cmsctech/174/17402.htm

Related Sub-Topics:

General Genetics and Disease | Science and Society - General | Bioethics
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Article Title: Insurance and Human Genetics: Approaches to Regulation
 
How to Cite close
Lemmens, Trudo(Jul 2008) Insurance and Human Genetics: Approaches to Regulation. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1002/9780470015902.a0005204.pub2]