Genetic Information, Genetic Testing, and Employment


Genetic technology can provide information that is predictive of the future health status of an individual. Employers and insurers usually seek access to any information that indicates an increased risk of ill health. This has given rise to fears that genetic information may be used to discriminate against some people.

Keywords: genetic screening; health insurance; discrimination; jurisprudence; employment


Billings PR (1992) Discrimination as a consequence of genetic testing. American Journal of Human Genetics 50: 476–482.

Dallman DK (1996) The lay view of what ‘disability’ means must give way to what Congress says it means: infertility as a disability under the Americans with Disabilities Act. William and Mary Law Review 38: 371–413.

Eggen JM (1992) Toxic hazards in the workplace: challenging the myths of the tort and workers compensation systems. Fordham Law Review 60: 843–872.

Epstein RA (1997) Mortal Peril: Our Inalienable Right to Health Care. Reading, UK: Addison‐Wesley.

Hall MA and Rich SS (2000) Laws restricting health insurers' use of genetic information: impact on genetic discrimination. American Journal of Human Genetics 66: 293–307.

Kaufmann MB (1999) Genetic discrimination in the workplace: an overview of existing protections. Loyola University of Chicago Law Journal 30: 393–424.

Lee C (1993) Creating a genetic underclass: the potential for genetic discrimination by the health insurance industry. Pace Law Review 13: 189–194.

Rawls J (1970) A Theory of Justice. Cambridge, MA: Harvard University Press.

Rothstein MA (1983) Employee selection based on susceptibility to occupational illness. Michigan Law Review 81: 1379.

Rothstein MA, Gelb BD and Craig SG (1998) Protecting genetic privacy by permitting employer access only to job‐related employee medical information: analysis of a unique Minnesota law. American Journal of Law and Medicine 24: 399–416.

Strudler A (1994) The social structure of genetic abnormality: ethical implications for managerial decisions in the workplace. Journal of Business Ethics 13: 839–844.

Further Reading

Brockett PL, MacMinn R and Carter M (2000) Genetic testing, insurance economics and societal responsibility. North American Actuarial Journal 3: 1–19.

Draper E (1991) Risky Business: Genetic Testing and Exclusionary Practices in the Hazardous Workplace. Cambridge, UK: Cambridge University Press.

Gaulding J (1995) Race, sex and genetic discrimination in insurance: what's fair? Cornell Law Review 80: 1646–1694.

Oakley EF (2000) Federal regulation of use of genetic information by insurers: what constitutes unfair discrimination? North American Actuarial Journal 3: 116–136.

Rothstein MA and Knoppers BM (1996) Legal aspects of genetics, work and insurance in North America and Europe. European Journal of Health Law 3: 143.

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McGleenan, Tony(Jul 2006) Genetic Information, Genetic Testing, and Employment. In: eLS. John Wiley & Sons Ltd, Chichester. [doi: 10.1038/npg.els.0005209]