Intellectually Disabled in Britain: Sexuality and Procreation

Ethical and social issues surround the issue of sexuality and parenting for people with intellectual disabilities. The traumatic history of eugenics is encapsulated in Nazi Germany's description of those with intellectual disability as unworthy of life and the 250 000 children and adults who were gassed but conscious and unconscious wishes to deny sexual and procreative rights to those with an intellectual disability is world-wide and contemporary despite legislative change. However, given the high levels of sexual abuse and exploitation that come from internal and external stigmatisation and trauma the movement towards greater human rights, sexual education and access to psychotherapy heralds new hope for children and adults with an intellectual disability and the wider community.

Key Concepts:

  • In working with people with intellectual disability on the themes of sexuality and procreation a multi-disciplinary approach is needed.
  • Ethics, human rights, genetics and psychotherapy are all relevant in working with sexuality and procreation in people with intellectual disability.
  • A history of trauma and eugenics is a necessary prerequisite to understanding the controversial topic of disability, sexuality and procreation.
  • Co-operation with geneticists is important in considering procreation and disability.
  • People with an intellectual disability have a right to their own sexuality.

Keywords: disability; parenting; sexuality; competence; reproduction; eugenics

 References
    book Bailey H and Upton J (2011) Loving Each Other – Safely, Books Beyond Words. London, UK: RCPsych Publications.
    Baradon T, Sinason V and Yabsley Y (1999) Assessment of parents and young children (Children Act 1989): a child psychotherapy point of view. Child: Care, Health and Development 25(1): 37.
    book Cotson D, Friend J, Hollins S and James H (2000) "Implementing the framework for the assessment of children in need and their families when the parent has a learning disability". In: Horwath J (ed.) The Child's World: Assessing Children in Need. London, UK: Department of Health.
    book Cottis T (2009) Intellectual Disability, Trauma and Psychotherapy. London, UK: Routledge.
    book Department of Health (2001a) Reference Guide to Consent for Examination or Treatment. London, UK: The Stationery Office.
    book Department of Health (2001b) Valuing People: A New Strategy for Learning Disability for the Twenty-first Century. London, UK: The Stationery Office.
    Hollins S and Sinason V (2000) Psychotherapy, learning disabilities and trauma: new perspectives. British Journal of Psychiatry 176: 32–36.
    book Hollins S and Sinason V (2005) Jenny Speaks Out. Books Beyond Words. London, UK: RCPsychPublications.
    book Keywood K, Fovargue S and Flynn M (1999) Best Practice? Health Care Decision Making by, with and for Adults with Learning Disabilities. Manchester, UK: National Development Team and Institute of Medicine, Law and Bioethics.
    O'Driscoll D (2009) A short history of psychodynamic psychotherapy for people with learning disabilities. Advances in Mental Health and Intellectual Disability 3(4): 4–9.
    book Reed EW and Reed CS (1965) Mental Retardation: A Family Study. Philadelphia, PA: Saunders.
    book Reed SC and Anderson VE (1973) "Effects of changing sexuality on the gene pool". In: De La Cruz FF and La Veck GP (eds) Human Sexuality and the Mentally Retarded, pp. 111–125. London, UK: Butterworth.
    book Sinason V (2010) Mental Handicap and the Human Condition: An Analytic Approach to Intellectual Disability. 2nd edn. London/New York: Free Association Books.
    book Sinason V and Hollins S (2004) "The ideal home and community for people with learning disabilities". In: Campling P, Davies S and Farquharson G (eds) From Toxic Institutions to Therapeutic Environments. London: Gaskell.
 Further Reading
    book Atkinson D, McCarthy M, Walmsley J et al. (2000) Women with Learning Difficulties Telling their Stories. Kidderminster, UK: British Institute of Learning Disabilities.
    book Baum S and Lyngaard H (2006) Intellectual Disabilities; A systemic approach. London: Karnac Books.
    Bicknell J (1990) Legal, philosophical and moral issues. Current Opinion in Psychiatry 3: 625–628.
    book Craft A and Craft M (1985) "Sexuality and personal relationships". In: Craft M, Bicknell J and Hollins S (eds) Mental Handicap: A Multidisciplinary Approach. Eastbourne, UK: Balliere Tindall.
    book De Groeuf J and Heinemann E (1999) Psychoanalysis and Mental Handicap. London: Free Association Books.
    book Department of Health (1971) Better Services for the Mentally Handicapped. London, UK: The Stationery Office.
    book Galton F (1892) Hereditary Genius, 2nd edn. London, UK: Macmillan.
    Goodey C, Alderson P and Appleby J (1999) The ethical implications of antenatal screening for Down's syndrome. Bulletin of Medical Ethics 147: 7–13.
    book Law Commission (1993) Mentally Incapacitated Adults and Decision Making. London, UK: The Stationery Office.
    book McDougal K, Swartz L and Van de Merwe A (2006) Zip Zip my Brain Haarts. South Africa: Human science research council.
    book Niedecken D (2003) Nameless; Understanding Learning Disability. London: Routledge.
    Shakespeare T (2000) Disabled sexuality: towards rights and recognition. Journal of Sexuality and Disability 18(3): 159–166.
    book Swartz L, Watermeyer B, Schneider M and Priestley M (2006) Disability and Social Change, A South African Agenda. Cape Town: HRSC Press.
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McCarthy, Jane, Sinason, Valerie, and Hollins, Sheila(Sep 2012) Intellectually Disabled in Britain: Sexuality and Procreation. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1002/9780470015902.a0005217.pub2]