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| Further Reading |
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Atkinson K,
Zuckerman B,
Sharfstein JM et al.
(2001)
A public health response to emerging technology: expansion of the Massachusetts newborn screening program.
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116:
122–131.
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Austoker J
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722–723.
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Geller G
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Genetic testing for susceptibility to adult-onset cancer: the process and content of informed consent.
Journal of the American Medical Association
277:
1467–1474.
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Hiller EH,
Landenburger G and
Natowicz MR
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Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States.
American Journal of Public Health
87:
1280–1288.
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Kent A
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1070.
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Ross LF
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Genetics in the Clinic: Clinical, Ethical, and Social Implications for Primary Care,
pp. 167–179.
St Louis, MO: Mosby.
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Scriver CR
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Genetic screening, testing and treatment: how far can we go?
Journal of Inherited Metabolic Diseases
19:
401–411.
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| Web Links |
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ePath
CARTaGENE http://www.cartagene.qc.ca/index.php?lang=english
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ePath
deCODE genetics http://www.decode.com/Company/Index.php
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ePath
European Society of Human Genetics. Population Genetic Screening Programmes: Principles, Techniques, Practices and Policies. http://www.eshg.org/Genetic%20screening%20principles.pdf
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ePath
Human Genetics Commission http://www.hgc.gov.uk/Client/library.asp
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ePath
Human Genetics Commission. Inside Information Balancing Interests in the Use of Personal Genetic Data, UK http://www.hgc.gov.uk/insideinformation/index.htm
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ePath
HumGen www.humgen.org
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ePath
Multiplex Initiative http://www.genome.gov/25521052
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ePath
National Coalition for Professional Education in Genetics http://www.nchpeg.org/
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ePath
New York State Task Force on Life and the Law. Genetic Testing and Screening in the Age of Genomic Medicine. http://www.health.state.ny.us/nysdoh/taskfce/screening.htm
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ePath
Ontario Government. Ontario Report to Premiers: Genetics, Testing and Gene Patenting: Charting New Territory in Healthcare. http://www.gov.on.ca/health/english/pub/ministry/geneticsrep02/report_e.pdf
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ePath
UK Biobank http://www.ukbiobank.ac.uk/
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ePath
World Health Organization Advisory Committee on Health Research. Genomics and World Health. http://www3.who.int/whosis/genomics/genomics_report.cfm
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