Citizens' Jury on Genetic Testing for Common Disorders

Marcus J Longley, University of Glamorgan, Pontypridd, UK

Published online: September 2006

DOI: 10.1002/9780470015902.a0005864

It is important to discover the views of lay members of the public on genetic testing, which is a topic of intense popular interest, although the scientific, as well as ethical, legal and social issues are complex. The citizens' jury described here allowed 15 members of the public in Wales, UK, to hear, cross-examine and debate a variety of perspectives on the topic over 4 days, and their recommendations (28 in all) provide a challenging agenda for health policy makers and clinicians alike, and a useful insight into the perspectives and priorities of lay people.

Keywords: citizens' jury; health policy; genetic testing; lay perspectives; national health service; Wales

 References
    book Cornish WR (1968) The Jury. London, UK: Penguin Books.
    Crosby N (1996) Creating an Authentic Voice of the People. Paper presented at the annual meeting of the Midwest Political Science Association, April 18–20, 1996, for the Panel on Deliberation in Democratic Theory and Practice.
    book Dienel P (1978) Plannungszelle. Opladen, Germany: West Deutscher Verlag.
    book Fishkin JS (1991) Democracy and Deliberation: New Directions for Democratic Reform. New Haven, CT: Yale University Press.
    book Institute for Public Policy Research (1996) Citizens' Juries: Towards Best Practice. London, UK: Institute for Public Policy Research.
    book Joss S and Durant J (1995) "Public Participation in Science". The Role of Consensus Conferences in Europe. London, UK: Science Museum.
    book Longley MJ and Iredale R (2000) "The genome project and public education". In: Macer DRJ (ed.) Ethical Challenges as We Approach the End of the Human Genome Project, pp. 93–106. Christchurch, NZ: Eubios Ethics Institute.
    book Royal Commission on Environmental Pollution (1998) Twenty-first Report Setting Environmental Standards, Cm 4053, pp. 108–109. London, UK: HMSO.
 Further Reading
    Iredale R and Longley MJ (1999) Public involvement in policy making: the citizens' jury on genetic testing for common disorders. Journal of Consumer Studies and Home Economics 23(1): 3–10.
    Iredale R and Longley MJ (2000) Reflections on citizens' juries: the case of the citizens' jury on genetic testing for common disorders. Journal of Consumer Studies and Home Economics 24(1): 41–47.
    book Welsh Institute for Health and Social Care (1997) Report of the Citizens' Jury on Genetic Testing for Common Disorders. Pontypridd, Wales: University of Glamorgan.

Related Sub-Topics:

Bioethics | General Genetics and Disease | Health Care | Science and Society - General
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Article Title: Citizens' Jury on Genetic Testing for Common Disorders
 
How to Cite close
Longley, Marcus J(Sep 2006) Citizens' Jury on Genetic Testing for Common Disorders. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1002/9780470015902.a0005864]