Citizens' Jury on Genetic Testing for Common Disorders

Abstract

It is important to discover the views of lay members of the public on genetic testing, which is a topic of intense popular interest, although the scientific, as well as ethical, legal and social issues are complex. The citizens' jury described here allowed 15 members of the public in Wales, UK, to hear, cross‐examine and debate a variety of perspectives on the topic over 4 days, and their recommendations (28 in all) provide a challenging agenda for health policy makers and clinicians alike, and a useful insight into the perspectives and priorities of lay people.

Keywords: citizens' jury; health policy; genetic testing; lay perspectives; national health service; Wales

References

Cornish WR (1968) The Jury. London, UK: Penguin Books.

Crosby N (1996) Creating an Authentic Voice of the People. Paper presented at the annual meeting of the Midwest Political Science Association, April 18–20, 1996, for the Panel on Deliberation in Democratic Theory and Practice.

Dienel P (1978) Plannungszelle. Opladen, Germany: West Deutscher Verlag.

Fishkin JS (1991) Democracy and Deliberation: New Directions for Democratic Reform. New Haven, CT: Yale University Press.

Institute for Public Policy Research (1996) Citizens' Juries: Towards Best Practice. London, UK: Institute for Public Policy Research.

Joss S and Durant J (1995) Public Participation in Science. The Role of Consensus Conferences in Europe. London, UK: Science Museum.

Longley MJ and Iredale R (2000) The genome project and public education. In: Macer DRJ (ed.) Ethical Challenges as We Approach the End of the Human Genome Project, pp. 93–106. Christchurch, NZ: Eubios Ethics Institute.

Royal Commission on Environmental Pollution (1998) Twenty‐first Report Setting Environmental Standards, Cm 4053, pp. 108–109. London, UK: HMSO.

Further Reading

Iredale R and Longley MJ (1999) Public involvement in policy making: the citizens' jury on genetic testing for common disorders. Journal of Consumer Studies and Home Economics 23(1): 3–10.

Iredale R and Longley MJ (2000) Reflections on citizens' juries: the case of the citizens' jury on genetic testing for common disorders. Journal of Consumer Studies and Home Economics 24(1): 41–47.

Welsh Institute for Health and Social Care (1997) Report of the Citizens' Jury on Genetic Testing for Common Disorders. Pontypridd, Wales: University of Glamorgan.

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How to Cite close
Longley, Marcus J(Sep 2006) Citizens' Jury on Genetic Testing for Common Disorders. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1002/9780470015902.a0005864]