Nondirectiveness

Abstract

Nondirectiveness is a concept that genetic counselors have supported as the foundation for their counseling approach. The underlying goal of nondirectiveness is to have the patient make fully informed autonomous decisions surrounding their genetic information.

Keywords: nondirectiveness; genetic counseling; ethical values; patient autonomy; value neutral; counselor

References

American Society of Human Genetics (ASHG) (1975) Genetic counseling. American Journal of Human Genetics 27: 240–242.

Bartels DM, LeRoy BS, McCarthy P and Caplan AL (1997) Nondirectiveness in genetic counseling: a survey of practitioners. American Journal of Medical Genetics 72: 172–179.

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Caplan AL (1993) Neutrality is not morality: the ethics of genetic counseling. In: Bartels DM, LeRoy BS and Caplan AL (eds.) Prescribing Our Future, Ethical Challenges in Genetic Counseling, pp. 101–117. New York, NY: Walter deGruyter.

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Further Reading

Fine BA (1993) The evolution of nondirectiveness in genetic counseling and implications of the Human Genome Project. In: Bartels DM, LeRoy BS and Caplan AL (eds.) Prescribing Our Future, Ethical Challenges in Genetic Counseling, pp. 101–117. New York, NY: Walter de Gruyter & Company.

Hall MA and Rich SS (2000) Patient's fear of genetic discrimination by health insurers: the impact of legal protections. Genetics in Medicine 2(4): 214–221.

Harper PS (1993) Insurance and genetic testing. The Lancet 341: 224–227.

Murray TH (1992) Genetics and the moral mission of health insurance. Hastings Center Report 22: 12–17.

Pokorski JP (1995) Genetic information and life insurance. Nature 376: 13–14.

Sorenson JR (1993) Genetic counseling: values that have mattered. In: Bartels DM, LeRoy BS and Caplan AL (eds.) Prescribing Our Future, Ethical Challenges in Genetic Counseling, pp. 3–14. New York, NY: Walter de Gruyter & Company.

Walker AP (1998) The practice of genetic counseling. In: Baker DL, Schuette JL and Uhlmann WR (eds.) A Guide to Genetic Counseling, pp. 1–26. New York, NY: John Wiley & Sons, Incorporated.

Weil J (2000) Psychosocial Genetic Counseling (Preface). New York, NY: Oxford University Press.

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How to Cite close
LeRoy, Bonnie S(Sep 2006) Nondirectiveness. In: eLS. John Wiley & Sons Ltd, Chichester. http://www.els.net [doi: 10.1002/9780470015902.a0005894]