References
Anspach RR (1993) Deciding Who Lives. Berkeley, CA: University of California Press.
Beecher HK (1966) Ethics and clinical research. New England Journal of Medicine 274: 1354–1360.
Borry P, Schotsmans P and Dierickx K (2005) The birth of the empirical turn in bioethics. Bioethics 19 (1): 49–71.
Bosk CL (1992) All God's Mistakes: Genetic Counseling in a Pediatric Hospital. Chicago, IL: University of Chicago Press.
Bosk CL (2010) Bioethics, raw and cooked: extraordinary conflict and everyday practice. Journal of Health and Social Behavior 5 (1): S133–S146.
Brown MB (2009) Three ways to politicize bioethics. The American Journal of Bioethics 9 (2): 43–54.
Chadwick RF (2015) Bioethics – Overview. In: eLS. Chichester: John Wiley & Sons Ltd.
Chambliss D (1996) Beyond Caring: Hospitals, Nurses, and the Social Organization of Ethics. Chicago, IL: University of Chicago Press.
Davies R, Ives J and Dunn M (2015) A systematic review of empirical bioethics methodologies. BMC Medical Ethics 16: 15. DOI: 10:1186/s12910‐015‐0010‐3.
DeCastro LD (1999) Is there an Asian bioethics? Bioethics 13 (3): 227–235.
DeVries RG (2004) How can we help? From ‘sociology in’ to ‘sociology of’ bioethics. Journal of Law, Medicine, & Ethics 32 (2): 279–292.
DeVries RG, Stancyzk A, Wall IF, et al. (2010) Assessing the quality of democratic deliberation: a case study of public deliberation on the ethics of surrogate consent for research. Social Science and Medicine 70 (12): 1896–1903.
Dzur AW and Levin L (2004) The ‘nation's conscience’: assessing bioethics commissions as public forums. Kennedy Institute of Ethics Journal 14 (4): 333–360.
Evans JH (2002) Playing God? Human Genetic Engineering and the Rationalization of the Public Bioethical Debate. Chicago, IL: University of Chicago Press.
Evans JH (2012) The History and Future of Bioethics: A Sociological View. New York: Oxford University Press.
Fischer F (1990) Technocracy and the Politics of Expertise. Newbury Park, CA: Sage Publications.
Hedgecoe AM (2012) Trust and regulatory organisations: the role of local knowledge and facework in research ethics review. Social Studies of Science 42 (5): 662–683.
Imber J (1998) Medical publicity before bioethics: nineteenth‐century illustrations of twentieth‐century dilemmas. In: De Vries RG and Subedi J (eds) Bioethics and Society: Constructing the Ethical Enterprise, pp. 16–37. Upper Saddle River, NJ: Prentice‐Hall.
Institute of Medicine (2016) Mitochondrial Replacement Techniques: Ethical, Social, and Policy Considerations. Washington, DC: National Academy Press.
Jonsen AR (1998) The Birth of Bioethics. New York: Oxford University Press.
Kim SYH (2010) Evaluation of Capacity to Consent to Treatment and Research. New York: Oxford University Press.
Kim SYH, Wilson RR, De Vries RG, et al. (2015) ‘It is not guaranteed that you will benefit’: true but misleading? Clinical Trials 12 (4): 424–431.
Kleinman AM (1980) Patients and Healers in the Context of Culture: An Exploration of the Borderland Between Anthropology, Medicine, and Psychiatry. Berkeley, CA: University of California Press.
Klitzman R (2010) Exclusion of genetic information from the medical record: ethical and medical dilemmas. Journal of the American Medical Association 304 (10): 1120–1121.
Lehoux P, Daudelin G, Demers‐Pavette O and Boivin A (2009) Fostering deliberation about health innovation: what do we want to know from publics? Social Science and Medicine 68 (11): 2002–2009.
Lieban RW (1990) Medical anthropology and the comparative study of medical ethics. In: Weisz G (ed.) Social Science Perspectives on Medical Ethics, pp. 221–240. Philadelphia: University of Pennsylvania Press.
Mbugua K (2012) Respect for cultural diversity and the empirical turn in bioethics: a plea for caution. Journal of Medical Ethics and History of Medicine 5 (1): 2–5.
National Bioethics Advisory Commission (1997) Cloning Human Beings: Report and Recommendations of the National Bioethics Advisory Commission. Rockville, MD: NBAC.
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1978a) The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research‐the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Washington, DC: US Government Printing Office.
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1978b) Special Study: Implications of Advances in Biomedical and Behavioral Research. Washington, DC: U.S. Government Printing Office.
President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (1982) Making Health Care Decisions: A Report on the Ethical and Legal Implications of Informed Consent in the Patient‐Practitioner Relationship. Washington, DC: U.S. Government Printing Office.
Rothman DJ (1991) Strangers at the Bedside: A History of How Law and Bioethics Transformed Medical Decision‐Making. New York: Basic Books.
Simonson P (2002) Bioethics and the rituals of media. Hastings Center Report 32 (1): 32–39.
Smedley BD, Stith AY and Nelson AR (2002) Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Washington, DC: National Academies Press.
Specter M (2015) The gene hackers. The New Yorker, November 16.
Stark LJ (2012) Behind Closed Doors: IRBS and the Making of Ethical Research. Chicago, IL: University of Chicago Press.
Stark LJ (2014) Declarative bodies: bureaucracy, ethics, and science in the making. In: Moore K and Kleinman D (eds) Handbook of Science, Technology, and Society. New York: Routledge.
Stevens MLT (1996) The Quinlan case revisited: a history of the cultural politics of medicine and the law. Journal of Health Politics, Policy and Law 21: 347–366.
Stevens MLT (2000) Bioethics in America: Origins and Cultural Politics. Baltimore, MD: The Johns Hopkins University Press.
Straus R (1957) The nature and status of medical sociology. American Sociological Review 22: 200–204.
Street J, Duszynski K, Krawczyk S and Braunack‐Mayer A (2014) The use of citizens' juries in health policy decision‐making: a systematic review. Social Science and Medicine 109 (1): 1–9.
Wilson D (2014) The Making of British Bioethics. Manchester, UK: Manchester University Press.
Further Reading
Bloom SW (2002) The Word as Scalpel: A History of Medical Sociology. Oxford: Oxford University Press.
Cockerham WC and Scrambler G (2010) Medical sociology and sociological theory. In: Cockerham WC (ed.) The New Blackwell Companion to Medical Sociology, pp. 3–26. New York: John Wiley & Sons.
DeVries R and Subedi J (1998) Bioethics and Society: Constructing the Ethical Enterprise. Upper Saddle River, NJ: Prentice Hall.
DeVries RG, Bosk CL, Turner L and Orfali K (2007) The View from Here: Social Science and Bioethics. London: Blackwell.
Elliott C and Johnston J (2009) Bioethics: Practice. In: eLS. Chichester: John Wiley & Sons Ltd.
Fox RC and Swazey JP (2008) Observing Bioethics. New York, NY: Oxford University Press.
Hedgecoe AM (2004) Critical bioethics: beyond the social science critique of applied ethics. Bioethics 18: 120–143.
Iredale R (2016) Use of Citizens' Juries to Address Complex Bioethical Challenges. In: eLS. Chichester: John Wiley & Sons Ltd.
Stark LJ and Hedgecoe AM (2010) A practical guide to research ethics. In: Bourgeault I, Dingwall R and DeVries RG (eds) The SAGE Handbook of Qualitative Methods in Health Research, pp. 589–607. London: Sage.
Wegar K (1992) Sociology in American medical education since the 1960s: the rhetoric of reform. Social Science and Medicine 35 (8): 959–965.